Wolfram Families

Welcome to the Wolfram Families section of our website.

Dedicated to families with a child or young person with Wolfram Syndrome, this section is a starting point for accessing support, advice and information.

You’ll find out more about the Wolfram Syndrome Family Coordinator whose main focus is to provide support and information to families of children or young people with the condition. The Birmingham Children’s Hospital and the Queen Elizabeth Hospital are running multidisciplinary clinics aimed at managing the different aspects of the condition in one place.

And the UK Wolfram Syndrome Support Group provides support and an exchange of information between families in the UK who are affected by the condition; they also raise funds for research into Wolfram Syndrome. To find out more about their work click here.