A warm welcome to Paula Brooke, our WellChild Children’s Nurse on the Isle of Wight whose post was made possible through funding from global healthcare company GSK. Paula is based at St Mary’s Hospital, Newport...
Posted 12 Feb 2019
Posted on the 17th November 2017
Jack has a diagnosis of Lowes Syndrome which means he has severe visual impairment, epilepsy, kidney problems and autistic spectrum disorder. He has limited life expectancy. Jack has difficulties with his mobility and is at risk of falls due to being unsteady on his feet and also having unpredictable seizure activity. He has very limited verbal communication leading to frustration and meltdowns which can result in self harm. His autism means that he has no fear and poor safety awareness, so his mum needs to closely supervise him at all times.
Jack had a small garden that was dangerous for him to play in and not suited to his needs. Volunteers from Siemens joined our Helping Hands team and worked tirelessly to completely transform the space in just two days.
They removed the existing patio and installed soft artificial grass throughout the garden as well as covering the hard angular brickwork to protect him from falling against sharp edges. They also transformed the existing shed into a sensory play room to give Jack a space of his own whatever the weather. And just like his favourite Minions, it had to be yellow and blue! It is packed with sensory elements including mirrors, lights and textures for him to interact and engage with.
Jack now has a garden that he can access safely and independently for the first time, to play in and enjoy whenever he likes.
You have changed my little boy’s lifeEmma, Jacks mum
Posted 12 Feb 2019
Rudy has hydrocephalus, hemiplegia affecting his right side, and is also autistic. Rudy finds social interactions difficult, he doesn’t understand the needs of others and can be unpredictable. Rudy puts inedible items in his mouth...
Posted 06 Feb 2019
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