Welcome to our WellChild Nurse at Great Ormond Street Hospital

Posted on the 31st January 2019

Welcome to Emilie Maughan, our WellChild Children’s Nurse at Great Ormond Street Hospital whose post was made possible through a partnership between WellChild, Talbot Underwriting and Great Ormond Street Hospital.

As the WellChild Long Term Ventilation Clinical Nurse Specialist, Emilie will be based at Kangaroo Ward at the Great Ormond Street Hospital for Children NHS Foundation Trust. She will support families by working closely with colleagues in the community, hospitals and other specialist centres to ensure the highest quality of care.

The WellChild Nurse posts seeks to support families at home to minimize the times they have to be admitted into hospital which can be upsetting for families. Through this post they will receive close support in the community from a nurse who can help parents gain in confidence and guide them through difficult times.

Emilie brings considerable expertise and a comprehensive understanding of the needs and challenges faced by the families with whom she will be working. She qualified from The University of Nottingham with a Masters in Nursing Science and worked on the Respiratory ward at Great Ormond Street Hospital, where she felt inspired by the dedication and determination of the families with children requiring Long Term Ventilation.

Later she spent two years as a Research Nurse and Educator for a worldwide study, rolling out a new Paediatric Early Warning Score System to help identify deteriorating children in hospital and working in the High Dependency Unit at King’s College Hospital. Following this she was the Respiratory Nurse Specialist at King’s College Hospital, specialising in sleep and ventilation before moving to the Royal Brompton Hospital to Home team to support the discharge of children requiring tracheostomy Long Term Ventilation across London and the South East of England.

Emilie commented: “I am honoured to be a WellChild representative and to be able to continue to be involved in the child and family’s journey to home at Great Ormond Street Children’s Hospital. I am passionate about improving services and promoting the needs of children requiring Long Term Ventilation and their families, ensuring that they are always at the centre of any decisions affecting their care.”

The WellChild Nurses’ programme was established to address a clear gap in the provision of care and support for children with long-term serious illness and complex conditions. In addition to keeping families together and benefitting a child’s development, it is often more cost efficient to care for a child at home than in hospital. One child who is benefitting from the extended support WellChild has already enabled is Henry Waines who was born in November 2017 with a range of complex heath needs. Henry has undergone many surgeries already in his life including corrective procedures, open heart surgery, colostomy and reversal.  He now has a tracheostomy and gastrostomy fitted. Currently WellChild Nurse Emilie and the respiratory team have been working to transfer Henry onto a portable ventilation system. He has now left intensive care and is beginning to prepare to come home with Emilie’s help.

Henry’s mother Shevonne Waines said: “Our WellChild Nurse Emilie is our lead professional in planning and co-ordinating the transition home and she communicates to us every step of the way. It is also of great comfort to us, to know Emilie will remain our contact when we are at home in relation to any ventilation issues he has and that a robust care plan will be in situ with actions to take in the event Henry becomes unwell, requires a hospital admission or as a family we require some respite. We are grateful for Emilie and for WellChild to fund her role at GOSH. Thank you.”

Emilie’s manager, Eleanor Tyrrell, Matron, Heart and Lung Division, at Great Ormond Street Hospital, said: “We have seen a transformation in the clinical and holistic care of our LTV patients since Emilie has joined our respiratory team.  The patient experience is visibly more streamlined with an emphasis on care quality and continuity for the patient and family.

“Emilie has been proactive in developing referral pathways and flowcharts to ensure our medical and nursing care follows an efficient reorganised approach with a clear focus on the patient and family.”

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