Sian Taylor: A Tribute

Posted on the 1st February 2019

This week, WellChild learnt the tragic news that our dear friend and colleague, Sian Taylor had lost her very brief battle with cancer. Her passion and commitment is a huge loss and her contribution to our organisation, our journey and our cause cannot be underestimated.

One of Sian’s two wonderful boys has a rare genetic condition and this experience made Sian a passionate ambassador and advocate for families caring for children and young people with exceptional health needs. A long time WellChild Parent Ambassador and advisor, Sian joined the WellChild Board of Trustees in 2015.

I sometimes think that the experience of caring for children with severe and complex health problems and disabilities equates to having learned a new foreign language and culture that is alien to those who have not experienced it.

Sian Taylor

Sian was passionate about building public awareness and understanding of the needs of children, young people and families. In 2015, she was a member of the parent team that spear-headed the #notanurse_but campaign and regularly appeared on television and in the media.

The campaign was a huge success in lifting the lid on life behind closed doors for many families and in 2016, the team won a WellChild Award and were further honoured by our patron HRH The Duke of Sussex at a private reception at Buckingham Palace in 2017.

Sian was a key advisor in the development of the WellChild Family Tree and especially passionate about the need to reach new families. In particular, she helped start WellChild’s Cardiff meet-ups, reaching out to families in South Wales and empowering them with speakers and information that they would find useful.

Everyone at WellChild has been terribly saddened by Sian’s passing, especially those of us who had the pleasure of working closely with her over the past few years. Sian’s determination to improve services and support for children and young people made her a powerful advocate for families as a Parent Ambassador, and her professionalism and insight made her a key member of our Board of Trustees. I worked closely with Sian on a number of media appearances when she spoke with such passion and clarity about the need for improvements, and the charity will be poorer without her involvement, drive and determination.

Colin Dyer, Chief Executive, WellChild

Sian was completely dedicated to making sure parents knew their rights to receive the support and care they are legally entitled to. She was determined to reach as many parents as possible.

Hannah Bemand, WellChild Head of Family Services

Sian was many things to many different people. To me she was a friend, whose no-nonsense approach to life was something I always aspired to have.

Faith Tutton, Fellow WellChild Parent Ambassador and friend

More than anything, Sian was a dear friend to everyone connected with WellChild and our thoughts and prayers are with her family at this difficult time. She will be sorely missed. Her loss will only spur us on to push even harder for greater recognition and support for families across the UK.

Sian launching WellChild's Manifesto for Change in 2014.

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