Noah was born with a condition so rare that it was thought at the time he was the only baby in the UK to have been diagnosed with it.
He spent the first eleven months of his life in hospital where it was decided that he would need a tracheostomy and ventilator to help him to breathe. This is when his Mum and Dad met WellChild Nurse, Elaine.
Elaine supported them in arranging all the necessary measures to bring Noah home. She trained them in all aspects of his care, including in using the ventilator.
Noah has now been home for over seven years. He is a loving, happy boy who now attends mainstream school. He loves street dance and takes an active part in school activities where ever possible.
He still needs his ventilator and round-the-clock care, but thanks to support and training from WellChild, his parents have become expert carers and fierce advocates for the needs of families across the UK.
The BBC Lifeline film is presented by long time WellChild Ambassador, Gaby Roslin, who explains how demand for WelChild’s work continues to grow. Many of the 100,000 children currently living in the UK with serious health needs can spend months, even years in hospital, simply because there is no support enabling them to leave. Meanwhile, those at home are constantly challenged by inconsistent and inadequate levels of care and support. WellChild provides a UK-wide network of children’s nurses, home and garden transformation projects and family support services to help give these children the best possible chance to thrive at home, together with their families.
Gaby Roslin said:
“Over the years I have met many of the children and families supported by WellChild. Families who have been thrust into a life they never imagined – a life of relentless, round-the-clock medical routines, hospital admissions and emotional stress. I have seen the impact that WellChild has had on their lives – turning families into expert carers, providing the emotional and practical support they need to thrive as a family.”