Our WellChild Parent Ambassadors are a network of parents/carers of children with exceptional health needs from across the UK. They volunteer with us to raise awareness of our work and help us reach even more families who might need our support.
The Parent Ambassador role focuses on three main areas:
Reaching Out – bringing families together to make friends make memories and find out more about WellChild.
Parent Voice – sharing their experiences and journeys with their children to help demonstrate the impact of our work, and keeping us informed of local challenges to help shape our future projects.
Supporting Us – speaking openly about their experiences at beneficiary events and fundraising pitches, raising awareness of the work we do and much needed funds.
Find out more about WellChild Parent Ambassadors
Meet some of the Parent Ambassador team
Michelle is mum to Jack who has multiple conditions to include Lennox Gastaut Syndrome. Michelle has supported several campaigns with WellChild, including #notanurse_but campaign and the exciting, award winning AV1 project. She has delivered talks to medical professionals at conferences and is passionate about technical solutions to medicine management.
Leanne is mum to three daughters, Erica, Sophie and Kyla. Sophie has cerebral palsy and multiple complex needs. Leanne is the driving force behind the parent led #notanurse_but campaign which works towards shining a light on caring for a child with complex care needs. Leanne has represented WellChild at many conferences and beneficiary events sharing her experiences caring for her daughter and her passion for making positive change to services and helping raise awareness of the work we do.
Helen’s daughter, Grace has undiagnosed exceptional health needs, uses a wheelchair and is peg fed. Helen has been vital in organising meet ups expanding our reach locally and sharing her experiences and journey with our supporters.
Faith’s daughter Sophie has Rett Syndrome, which means she is in a wheelchair, on constant oxygen, fed through a tube, and dependent on more than 30 doses of medication every day. Faith is passionate about the rights of disabled children and their families, and wants to share her knowledge in order to improve services and raise awareness.
Jill is mum to Noah who has a very rare form of interstitial lung disease, has a tracheostomy, a gastrostomy and is ventilated with oxygen when asleep or poorly. Through their family experience, Jill knows how important it is for families of children and young people with exceptional health needs to get support from charities like WellChild. Jill is a passionate speaker, #notanurse_but campaigner and enjoys planning fun meet ups for families.
Stacey is mum to Dylan. Dylan has cerebral palsy and has undergone multiply surgeries. Stacey has been vital in raising awareness of our work by speaking about her experiences locally.
With four children, including Fraser who has Cerebral Palsy and a large amount of daily care needs, Craig knows how important it can be for families to find assistance from charities like WellChild.