News & Blog

Wolfram Syndrome Annual Conference

We held our 5th annual Wolfram Conference on Saturday 8th October 2016, at Whittlebury Hall Hotel and Spa. It was the most successful so far, with 93 people attending! Attendees enjoyed a mix of presentations, workshops...

Posted 09 Oct 2016

Sleep Support

Lack of sleep is one of the most commonly discussed topics in the WellChild online support group. It includes discussions about: Parents that need support so they can get some much needed sleep I’m struggling...

Posted 09 Sep 2016

Mountain Rescue Day for WellChild Families

Recently WellChild families attended a Mountain Rescue Day at Holcombe Moor Amy Training Camp in Bury Lancashire which was hosted by Bolton, Bowland Pennine, Calder Valley, Holme Valley and Rossendale & Pendle Mountain Rescue Teams....

Posted 03 Aug 2016

Welcome to Katy, our WellChild Nurse in Greater London

Parents of children and young people with exceptional health needs in Greater London and beyond are receiving the extra support they need with the official launch this week of a new nursing role at Royal...

Posted 12 Jul 2016

#notanurse_but a Dad

“A man who does not plan long ahead will find trouble right at his door.” – Confused!!! What are dad’s plans for Sophie when she leaves school?  – Errr, I don’t have any.” What are...

Posted 17 Jun 2016

Product Recommendation

WellChild Family Tree member Emma has just received some pyjamas for her son Charlie from Wrap Pyjama Fairies. Their simple goal is to create and distribute beautiful pyjamas and surgical gowns that give children an emotional boost...

Posted 09 May 2016

Family Holidays

“When you are a parent of a seriously ill child, it can be easy to lose your resilience, and parents can often feel that it is too difficult to go away for a break, with...

Posted 27 Apr 2016

Better at Home Training Suite launched

An innovative training resource for families of children and young people with long term and complex medical needs, the ‘Better at Home’ Training Suite, is officially launched by Edge Hill University and WellChild on the...

Posted 04 Dec 2015

Better At Home Suite