Recruitment has started for children, young people and adults with Wolfram Syndrome to the first ever clinical trial into a medicine which has shown promise in laboratory tests to slow down the progression of this...
Posted 13 May 2019
Cayden has autism, which affects his behaviour, learning ability and communication. He also has hypermobility which makes him unsteady on his feet. He has no awareness of danger so his parents need to watch him...
Posted 30 Apr 2019
Looking for inspiration for some family fun this Spring? WellChild Parent Ambassadors have come up with thirteen fun (and mostly free or cheap) activities to help keep all the family entertained, whatever the weather. Indoors...
Posted 25 Apr 2019
Melanie Parker, Head of Challenge Events and Supporter Engagement, took 10 minutes out to chat to us about the WellChild Challenge Events team… Hi Mel, can you tell me a bit about yourself and...
Posted 18 Apr 2019
Parent Ambassadors On the 20th March, six WellChild Parent Ambassadors came together for a training day in Birmingham. The day was a huge success, with updates on current projects, media training and discussions on how...
Posted 16 Apr 2019
Rachel Mason, is an award-winning songwriter, musical director, arranger and vocal coach. She was an expert judge for Sky One television’s National Television Award-nominated show, Sing: Ultimate A Cappella during which she worked with musicians ranging...
Posted 10 Apr 2019
Hayley has Leigh syndrome – a rare inherited disorder that affects the central nervous system. She also has a hearing impairment and needs 24 hour care. Hayley cannot speak, so she communicates through facial expression...
Posted 09 Apr 2019
Jeff Evans, father of 2015 WellChild Award winner Nellie-Mai, writes about their evening at the ceremony and shares their experience meeting WellChild Patron the Duke of Sussex. I think it’s difficult to understand, without having a...
Posted 04 Apr 2019
WellChild, has opened the call for nominations for the 2019 WellChild Awards, in association with GSK. This prestigious annual event celebrates the inspirational qualities of the UK’s seriously ill children and young people and the...
Posted 21 Mar 2019
Over the last nine months, WellChild has been working on a fantastic new phone app with support from Comic Relief’s ‘Tech For Good’ programme. Today, on Red Nose Day, we would like to tell you...
Posted 15 Mar 2019
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