Lucie has Rett Syndrome, a rare neurological disorder which causes a progressive inability to use muscles for eye and body movements and speech. She also has scoliosis and epilepsy. Lucie uses a wheel chair full...
Posted 13 Jun 2018
WellChild are delighted to be announced as 2018 charity partner of the prestigious October Club. The partnership will help establish a new network of Better At Home Units across the UK to empower parents and...
Posted 05 Jun 2018
Kian has Down Syndrome, a heart defect and Hirschsprung Disease. These conditions mean that he has a range of medical needs; including constant bowel problems, learning and communication difficulties, and he is unsteady on his...
Posted 04 Jun 2018
They’re not scary and we hope they won’t bite but be on the lookout for our purple critters if you are out and about in the countryside this year as they will be in a...
Posted 30 May 2018
Abdulbasit has a diagnosis of Global Developmental Delay with regression in speech, Autistic Spectrum Disorder, severe learning difficulties, and is undergoing tests for Cornelia De Lang syndrome (limb abnormalities, heart defect, small at birth). He...
Posted 29 May 2018
Khyri is autistic, is non-verbal and has no awareness of danger, which puts him at risk of hurting himself. Khyri gets very frustrated when he does not understand things which can have a negative impact...
Posted 22 May 2018
The annual Ed Chamberlin Golf Classic for WellChild was a huge success on May 21st, raising more than £46,000 for our work with seriously ill children and their families. The event, held at Woburn Golf Club,...
Posted 22 May 2018
Among the guests at the Royal Wedding between Prince Harry and Ms Meghan Markle will be families and nurses from around the UK representing WellChild. After weeks of excitement and shopping for outfits in the...
Posted 18 May 2018
I would be lying if I said I wasn’t nervous, excited and hugely honoured at the prospect of sitting in St George’s Chapel, Windsor on Saturday 19th May. But was I surprised to receive this invitation?...
Posted 18 May 2018
Medicines for Children have worked with our Parent Review Panel to publish a new leaflet called “Sodium valproate and pregnancy: Support for parents and carers”, aimed at parents whose children are taking the anti-epileptic medicine,...
Posted 14 May 2018
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