Take part in a virtual challenge set by one of our families.
Some of the families we support have to travel miles to receive care for their child. That’s why four WellChild families have set you the task of taking part in a virtual challenge to complete the distances they travel on a regular basis. You decide how you want to do it.
How it works…
- Pick the distance (5k, 21k, 52k or 257k).
- Decide how you want to do your challenge. Run, cycle, walk, swim, jog with your buggy or take part in your wheelchair.
- Enter as a team, in a relay or set your own pace.
- Sign up below for just £10. If completing a challenge as a team, each team member must sign up individually in order to receive a medal.
- To go the extra mile for WellChild set up your own fundraising page!
- Do your challenge a little at a time or all at once. It’s up to you!
- Send us evidence that you have completed it, e.g. some photos, a map of the route, or a screenshot of a tracking app.
- The icing on the cake; when you’ve completed your challenge, we will send you a very special medal lovingly designed by a family WellChild are supporting.
Take part in Noah, Louie, Jessie or Oliver's challenge.Sign up today
Not ready just yet for one of our bigger challenges? Don’t worry; Noah has put together a 5k to get you started!
Six-year-old Noah lives in Yorkshire with his mum, dad and little brother Oscar. Like many seriously ill children across the UK, Noah’s journey has not been easy.
Noah was born with interstitial lung disease and spent the first nine months of his life in Alder Hey Children’s Hospital. Noah has a tracheostomy to keep his airway open, and a ventilator to help him breathe at night. Whilst in hospital, Noah’s parents met WellChild Nurses Elaine & Katie, who helped transition Noah home, providing emotional and practical support to Noah’s parents along the way.
At home, Noah requires round-the-clock care and makes a 5k journey each month to the hospital pharmacy for lifesaving medicine. For his parents, this is a small journey to make to have their son back at home.
Travel the half-marathon Louie does every day to get to school.
Eleven-year-old Louie has cri-du-chat syndrome, a condition causing developmental delay, low muscle tone and microcephaly.
Louie lives in Cornwall, surrounded by beaches. However, despite the holistic benefits of living in such a beautiful location, it comes with challenges. Louie attends a special educational needs school, which is over 21k away and the local council is unable to provide transport. The school run for Louie’s mum is more difficult than most. The morning routine can be challenging with three other children to also get to school. Any delays cause Louie to become very distressed and it can take him a couple of hours to calm down.
But for mum Laura, these journeys are totally worth it, “the school is perfect for Louie’s needs.” He loves ‘studio time’, with its sensory lighting and sounds. Plus, his school will accommodate him until he is 19, which is great for Louie as he struggles with change. We want to make sure there is as much support for parents like Laura as possible. Will you help by rising to Louie’s challenge?
Make the journey that Jessie does every fortnight to hospital.
Twelve year old Jess has Beckwith-Wiedemann syndrome, Chiari malformation and chromosome abnormality, which causes delayed development, limited mobility and chronic pain. Despite this, her mum, Alison tells us she’s the happiest person alive!
Every fortnight, Jess and her mum make the 52k journey to Alder Hey Children’s Hospital for Jess’ care. Recently, Jess was an inpatient for six months as her bowel was perforated. This had a huge impact on family life. With two children back at home, Jess’ Mum Alison had to travel 52k back and forth every day. Alison would even drive home some nights at 11pm, when the nurses came to care for Jess, just to cuddle her other children, even though she was back in hospital the following morning before they woke up.
“If it were only Jess, I’d have stayed in hospital with her, but with two children back at home it meant travelling 52k each day to say goodnight to Joe and Liv too.”
The ultimate challenge: 257k that Oliver travels to see his specialist.
Six-year-old Oliver has alternating hemiplegia of childhood (AHC), an ultra-rare condition affecting less than one in a million people. It causes episodes of weakness in every muscle in Oliver’s body, from arms and legs to his breathing, and can last anywhere from a couple of hours to days. Some episodes he never fully recovers from.
Oliver’s condition means that on a regular basis they have to travel the 160 mile roundtrip from Southampton to see the only specialist for his condition in the country at Great Ormond Street Hospital in London. This is a huge journey for a six-year-old. Oliver has to miss a day of school to attend his appointments and the journey has a big impact on the whole family. His dad cannot make every trip as he must take leave from work to do so, and childcare arrangements have to be made for his younger sister Alisia.
Making the trip multiple times a year is expensive and often impractical, but absolutely necessary.
We want to raise awareness of the distances young children like Oliver have to travel for their care and the impact this has on their families. Are you daring enough to take part in WellChild’s biggest virtual challenge?