Care at home

Tell us your experiences of caring for your child at home

One of our campaign priorities is to ensure that a consistent level of care and support is available to parents 24/7 so that they can care for their child with exceptional health needs at home.

Challenges that parents and carers face are often linked to the availability and competency of paid carers; the accountability of private agencies; the lack of provision and breakdowns in packages of care; or the need for more information and consistency in criteria, eligibility and assessment.

So that we can shine a light on just how many of you are affected by these issues, we need your help.