London

Location: St George’s University Hospital
Nurse: Alex
Post: WellChild Clinical Nurse Specialist – Paediatric Respiratory & Long Term Ventilation
Year post established: 2017
Post Summary: This post supports children and young people with long term ventilation/non-invasive ventilation needs in hospital, through their journey home and back into their community.

"Long term ventilation has always been an interest of mine, and I find it very rewarding being able to help and support these children and families that have been in hospital for long periods of time."

WellChild Nurse Alex

Location: Evelina Children’s Hospital
Nurse: Lucy
Post: WellChild Complex Care Discharge Co-ordinator
Year post established: 2012
Post Summary: This post aims to provide a comprehensive service to children and young people with long term complex health needs ensuring a seamless service from hospital to home.


Location: Great Ormond Street Hospital for Children
Nurse: Emilie/Jenny
Post: WellChild Long Term Ventilation (LTV) CNS
Year post established: 2018
Post Summary: This post provides specialized and up-to-date nursing advice and support to children with long term complex needs, their families, and other healthcare professionals during their stay and after having been discharged from hospital.


Location:  Life Force Team
Nurse:  Helen
Post:  WellChild Nurse – Life Force Team – Paediatric Palliative Care
Year post established: 2013
Post Summary: As part of the Life Force Team Helen supports children and families who are living with a life limiting, life threatening condition. She facilitates end of life care in the home and provides follow up bereavement care to support these families.


Location: Great Ormond Street Hospital for Children
Nurse: Tara
Post: WellChild Paediatric Palliative Care Clinical Nurse Specialist/ Practice Educator
Year post established: 2016
Quote: I am passionate about ensuring children with life- limiting conditions have access to the right services. In my role as a WellChild nurse I have the privilege of supporting families from diagnosis throughout life and into bereavement by being part of an expert team, not only delivering high quality palliative care but also being able to educate and hopefully inspire others too.
Post Summary: Tara has a dual role; it is 50% clinical and 50% practice education. The post provides targeted palliative care clinical teaching to professionals and families caring for children and young people with life-limiting conditions and clinical support both in hospital and at home.


Location:  Hospital to Home Team, Royal Brompton Hospital
Nurse:  Jemma
Post: Interim LTV Education Lead and WellChild Clinical Nurse Specialist
Year post established: 2015
Post Summary:  Jemma leads the education team delivering training to those providing care to children on long-term ventilation both in hospital settings and in the community. She also acts as a regional key worker to children on the journey from hospital to home.


Location: King’s College Hospital
Nurse: Cat
Post: WellChild Children’s Nurse – Complex Needs Liaison Nurse Specialist
Year post established: 2016
Quote: Caring for a child with complex needs is incredibly challenging and the discharge process in particular can generate many obstacles and barriers to overcome. I’m really looking forward to working closely with the children and families and hope that my experience which spans critical care in hospital and working with these children in the community will help me to develop the discharge process further and facilitate as smooth a transition home as is possible for children and their families.
Post Summary: Cat provides expert advice and support for children and young people with complex needs and their families to ensure smooth and timely discharge from paediatric intensive care, reducing long term hospitalisation and getting the family home.