Last month our Helping Hands team set out on a two day project, with volunteers from Kingsley Napley to transform the family garden for Alfie and Logan. Unfortunately the project was cut short as a WellChild...
Posted 20 Nov 2018
Six year old Theo has an unidentified genetic syndrome which causes severe hypermobility and uncontrolled epilepsy. He also has sensory processing difficulties and developmental delay. Theo needs 24 hour care, and constant support when using...
Posted 22 Oct 2018
Five year old Amir has Autism which affects his learning ability and means he displays some behaviour difficulties, particularly aggression towards himself and others. He is non-verbal so communicating his needs can be challenging and...
Posted 03 Oct 2018
Dakota has Achromatopsia, the condition is associated with colour blindness, visual acuity loss, extreme light sensitivity and Nystagmus. She also has hyper mobility. These conditions affect her mobility and she constantly falls and bumps into...
Posted 12 Sep 2018
Jake has a diagnosis of cerebral palsy, he also has learning difficulties and severe reflux. He is non verbal and communicates through facial expressions and gestures. Jake also has epilepsy with frequent hospital admissions. Jake...
Posted 24 Aug 2018
Keryn has a diagnosis of Down’s syndrome. She has low muscle tone, a heart condition, delayed learning and sleeping problems. She has no awareness of danger and will put anything in her mouth. Keryn has...
Posted 31 Jul 2018
Joe has a diagnosis of chromosomal deletion 9q34, a rare genetic disorder which means that he has a range of complex needs and severe learning difficulties. He requires physical assistance with all aspects of daily...
Posted 09 Jul 2018
Samuel has severe asthma, autism and complex learning difficulties. He also has epilepsy, joint hyper mobility, and adrenal insufficiency. He can become very ill, quickly and has been admitted to hospital frequently when his asthma...
Posted 25 Jun 2018
Lucie has Rett Syndrome, a rare neurological disorder which causes a progressive inability to use muscles for eye and body movements and speech. She also has scoliosis and epilepsy. Lucie uses a wheel chair full...
Posted 13 Jun 2018
Kian has Down Syndrome, a heart defect and Hirschsprung Disease. These conditions mean that he has a range of medical needs; including constant bowel problems, learning and communication difficulties, and he is unsteady on his...
Posted 04 Jun 2018
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