Rogan’s Story

Rachel had a normal pregnancy but it was quite apparent soon after Rogan was born that he was poorly. He didn’t cry after birth and was immediately taken to Special Care baby unit at Ninewells hospital in Dundee. Rogan was born with a rare undiagnosed syndrome which means he is fed by a tube, has a tracheostomy and needs ventilation overnight and sometimes during the day.

Rogan was transferred to Edinburgh Sick Kids where the family met WellChild Nurse Linda. Rogan’s ventilation was sorted out and after 3 months in Edinburgh, he was transferred back to Ninewells.

WellChild Nurses Linda and Laurie trained Rogan’s parents in caring for his tracheostomy – how to change it, what to do in an emergency, and gave them both CPR training.

With the help of WellChild Nurses Linda and Laurie, Rogan was finally discharged home on 22nd December, after spending 10 months in hospital. Although they now see WellChild Nurse Linda less often, they know that she is always on the end of the phone if they have any concerns or worries.

Rogan is now at home doing really well. He attends nursery 2 days a week and has an overnight care package.

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Rogan is doing really well at home now. WellChild Nurse Linda was fantastic in helping us coordinate everything needed to have him come home to us, and it is such a comfort to know she is on the end of the phone whenever we have any concerns.

Wayne, Rogan's dad

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