Growing Up Using A Ventilator
A booklet written for young people and young adults that use a ventilator to support their breathing.
A booklet for young people and young adults (11+), written by the Long-Term Ventilation Team at Royal Manchester Children’s Hospital and the Northwest Ventilation Unit at Wythenshawe Hospital, Manchester University NHS Foundation Trust.
The booklet is free and downloadable. It includes information on:
- Ventilator support and care
- Health, lifestyle, and leisure
- Travel
- Education and work
- Managing Emotions
- Further support and information
The booklet was written with input from young people who use ventilators, MFT Youth Forum, Nurse Specialists, Physiotherapists, and Psychologists from the Children’s and Adult LTV teams at MFT.
WellChild would like to give special thanks to Janice Fauset-Jones, a WellChild Specialist Practitioner (Transition Nurse for Complex Needs and Long-Term Ventilation), who has given her time and expertise to make this booklet possible.
The booklet was written by a WellChild Specialist Practitioner, with input from young people who use ventilators, MFT Youth Forum, Nurse Specialists, Physiotherapists, and Psychologists from the Children’s and Adult LTV teams at Manchester University NHS Foundation Trust.
Published by: Kathy Gibson, Digital Information Officer
First published March 2023
Next review due March 2024
