Competency documents for parent and carer LTV training

A training resource by the Paediatric Pan London Long Term Ventilation Group for those caring for a child or young person with Long Term Ventilation.

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The Paediatric Pan London Long Term Ventilation (PPLLTV) Group is a group of Clinical Nurse Specialists (including WellChild Nurses) and Allied Health Professionals (AHP) involved in the care of LTV patients across London and the South East. The PPLLTV Group meets every 2-4 months with a focus on quality improvement for Paediatric Long Term Ventilation (both invasive ventilation and Non-invasive ventilation) services and works closely with the North and South Thames Paediatric Networks (NTPN and STPN) and WellChild in order to ensure that work is not duplicated and appropriate stakeholders are involved.  

Following the success of the Paediatric Pan London Oxygen Group (PPLOG) which has a focus on quality improvement for Paediatric Home Oxygen services, it was felt that there was a need for a similar approach to encourage more joined up LTV services across London and the South East in order to try to improve and standardise some of the processes for children that require LTV. This has been particularly helpful throughout the Coronavirus Pandemic enabling the LTV Centres across the region to support each other and create a Region wide approach to advice and challenges faced by the Pandemic for our LTV patients and their families.  

Several service improvement projects have been identified by the PPLLTV Group, including the development of a standardised escalation plan for LTV patients and a standardised Competency Document for parent and carer training. These Competencies form the first completed project from the PPLLTV Group with further projects planned.  

Non-invasive ventilation competency documents

These competency documents are for parents and carers of CYP requiring non-invasive ventilation. The competencies outline the necessary knowledge and skills required to be achieved and demonstrated, whilst the guidance notes provides guidance to the assessor on what needs to be covered within each competency. It also acts as a resource book for the parent or carer. The guidance notes cover an array of ventilators. For more specific information on a particular ventilator please see manufacturing guidance. 

Tracheostomy and invasive ventilation competency documents

These competence documents for parents and carers of children and young people requiring tracheostomy or invasive ventilation. The competencies outline the necessary knowledge and skills required to be achieved and demonstrated, whilst the guidance notes provide guidance to the assessor on what needs to be covered within each competency. It also acts as a resource book for the parent or carer. For invasive ventilation the guidance notes are specific to the ventilator so please pick the one required and use this alongside the generic invasive ventilation competencies. The tracheostomy competencies and guidance are in one document with many resources included kindly provided by Great Ormond Street Hospital. Some of the tracheostomy sections may not be relevant to your parent or carer so these have been added to the later part of the document. There are clearly outlined core competences that must be achieved as a minimum in the beginning of the document. For parent or carer required to be tracheostomy invasive ventilation competent both the competencies will need to be completed.