Campaign with us

Giving children with serious health needs and their families a voice.

Our campaigns give parents and carers of children with serious health needs a voice. We aim to raise awareness about what it is really like to care for a child with serious health needs, influence decision makers and help families access the services they need to make sure their child thrives at home.

Recently we have campaigned for:

  • Changes to the Government guidance for aerosol generating procedures (AGP) in education, to allow more children who require AGP to return to in-person education.
  • Children who require ventilation to be made a priority during a shortage of ventilator parts in 2020, and to ensure that future supply lines were protected and ring-fenced so that families could get the supplies they need.