Back to School
In this article we look at what can be done to help prepare a child with complex medical needs to return to school after the holidays. Including, travel, food, equipment, and more!
Starting school, or going back after a break, can feel daunting for children and young people. It takes work for parents to successfully prepare their children for going back to school and starting a new year. But for parents who have children with complex medical needs, the process of transitioning from summer to school can be more of a challenge.
In this article, we look at key topics to make the transition as smooth as possible.
Children in state schools in the UK tend to have a six-week break over the summer returning to school at the start of September. To find out when your child’s school starts, check your Local Authority website. To find out which Local Authority you are with, click here.
If your child is not already in school, it is worth noting that Children born from 1 April to 31 August, who are known as summer-born children, do not need reach compulsory school age until the September after their fifth birthday, a year after they could first have started school. Click here for further information and advice to help you decide what would be best for your summer-born child.
Staggered Starts
Some primary schools offer a staggered start, which may include reduced hours for the first week and different year groups starting at different times of the day or on different days of the week. The intention of staggered starts is to make the intake process less daunting for children, but they can be problematic for parents who have other responsibilities. It is up to each school to decide if they implement a staggered start or not. Check with your child’s school in advance regarding their policy.
The School’s Admission Code is the statutory guidance that schools must follow when carrying out duties relating to school admissions and should ensure that school places are allocated and offered in an open and fair way. There is also guidance on how to appeal decisions made, which you can find here.
Clothing and Equipment
It can be more challenging to find appropriate school clothes and equipment for children with complex medical needs.
Click on the yellow boxes for links to online shops that sell adaptive clothing and equipment, including adaptive school wear. Remember, many sites offer a discount when you sign up for their newsletters.
Some Local Authorities provide non-repayable grants for uniform costs. Click here to read an article which lists the Local Authorities in the UK and which ones offer grants to help with school clothing costs.
You may be able to find good quality second-hand or unworn clothing on local Facebook groups, particularly groups that are for the school your child attends.
Also, see our article on Grants for Families for links to grants that may be available to you and tips on how to apply.
- Specialkids.com – 10% off when you sign up for their newsletter.
- Fledglings.org.uk– school wear section – 5% off when you sign up for their newsletter
- Seenin.co.uk
- Marksandspencer.com
- Johnlewis.com
- Tubiekids.co.uk – specifically for tube-fed children – 10 % off when you sign up for their newsletter
- SEN TTS group.co.uk – they have a price match promise.
- School Speciality.com
- Gophersport.com – they have a 100% satisfaction guarantee
- JohnPreston.co.uk
Transport
If your child cannot walk to school because of a special educational need, disability, or mobility problem, they could be entitled to free school transport, even if your home is in close proximity to your child’s school.
An assessment must be made of the child’s individual needs, but Statutory guidance states:
‘Usual transport requirements (e.g., the statutory walking distances) should not be considered when assessing the transport needs of children eligible due to SEN and/or disability.’
This applies to all children with SEND or mobility difficulties, not just children with EHC plans or who attend special schools.
To ask for an assessment of your child’s travel needs, you should contact your Local Authority. To find out which Local Authority you are with, click here.
You should include as much information as you can with your application. It’s important to show that your child meets the eligibility criteria. Include information on:
- Why your child is not able to walk to school, both physical reasons and any need for close supervision.
- Give details of the actual journey on foot and how your child would be affected.
- If you have professional evidence about your child’s walking ability or the difficulties they have in public places, include that too.
Things to note:
If your child is under 5 years old: Most children now start school in September after their fourth birthday. There is however no duty to provide transport until children reach compulsory school age, which is the term after they turn five.
Education Health Care Plan (EHCP): If your child has an EHCP, you do not need to be concerned if transport is not mentioned, as eligibility is covered under general education law.
Times of travel: The legal entitlement for transport is for the beginning and end of the normal school day only. You don’t have a right to special arrangements to enable your child to attend appointments or after-school clubs. If you do need flexible arrangements, it may be worth considering a personal travel budget or a mileage allowance.
Suitable travel: The local authority has a duty to provide suitable transport, which must be non-stressful. This is defined in case law as transport that enables a child ‘to reach school without undue stress, strain or difficulty … to travel in safety and in reasonable comfort’. Statutory guidance recommends maximum journey times of 45 minutes for primary-aged children and 75 minutes for secondary-aged children.
Food
Studies show that Children who have a healthy diet are more likely to be able to retain information they have learnt at school, alongside improved mood, and behaviours.
Food served in all mainstream schools in England must meet school food standards so that children have healthy, balanced diets.
These standards should make sure that school lunches always include:
- One or more portions of fruit and vegetables every day
- One or more portions of starchy food, such as bread or pasta every day
- A portion of food containing milk or dairy every day
- A portion of meat or poultry on 3 or more days each week
- Oily fish once or more every 3 weeks
Foods high in fat, salt and sugar, as well as low-quality reformed or reconstituted foods, are severely restricted.
Your child may be able to get free school meals.
In England, Scotland and Wales, all children in infant schools (reception, year 1, and year 2) are entitled to free school meals. You do not need to apply for these; they are automatically given.
In Northern Ireland, infant school children are only entitled to free school meals if they, or their parents, are in receipt of certain benefits.
Children in primary and secondary schools are entitled to free school meals if you or your child receive one or more of the following benefits:
- Income Support
- Income-based Jobseeker’s Allowance
- Income-related Employment and Support Allowance
- Support under Part VI of the Immigration and Asylum Act 1999
- The guaranteed element of Pension Credit
- Child Tax Credit (provided you’re not also entitled to Working Tax Credit and have an annual gross income of no more than £16,190)
- Working Tax Credit run-on – paid for 4 weeks after you stop qualifying for Working Tax Credit
- Universal Credit – if you apply on or after 1 April 2018 your household income must be less than £7,400 a year (after tax and not including any benefits you get)
If you do not have recourse to public funds your child may still be eligible for free school meals. Ask their school or local authority whether they’re eligible.
It is important to note that even if your child is unable to attend school due to their needs but they are registered with the school and eligible for benefits-related free school meals, you could be able to receive good quality lunch parcels at home or food vouchers issued from your school. Please contact your school to discuss this.
Getting free school meals during term time means you also qualify for free extra help during the school holidays. How this works and what you get depends on where you live in the UK, but it can include free meals, free activities, and even money to help with your childcare costs. Check with your local authority to find out what is available in your area.
For more information on free school meals, click on the links below:
You can also read our article on Food Shopping and Deliveries for information on ways online shopping may help you, how to make shopping in-store easier, how to access food banks, and more.
Managing Anxiety
Going back to school after time off can be anxiety-inducing, for both the child and parent carer. Below are top tips on how to reduce anxiety about returning to school:
- Talk to your child about what to expect – have regular conversations throughout the holidays about returning to school. Try and make the conversations light-hearted and concentrate on the things they like about school. If anything is going to be different when they return talk about this in advance i.e., if they are going to be in a different classroom or have a different teacher. You may want to use social stories or flashcards to assist with communication. You could ask your school for pictures of new staff or classrooms to use in your conversations or social stories.
- Meet up with school friends – if possible, arranging play dates or days out with other students over the holidays may help the child be less anxious when they return, as they will recognise other students they had fun with during the holidays.
- Visit the school – some schools have times children and parents can attend ahead of the first day back. This will help introduce or reacquaint the child in advance.
- Talk with the SENCO – The more teachers and staff know about your child, the better; arrange a meeting so you can explain their needs and what the school can do to make things easier.
- Practice morning routines – you may want to start a similar routine a week or more prior to the return to school to reduce the amount of change on the first day back at school.
- Practice putting on a uniform – this can be particularly helpful for children with sensory issues.
- Involve the child in decision-making – if you let your child make some decisions about returning to school it can give them a greater sense of control. This could be choosing their lunchbox and stationery in the weeks prior to return.
- Reduce your own anxiety – reducing your own anxiety will also help your child feel less anxious. WellChild has a variety of articles on the Information Hub to help with parent carer wellbeing. You can also join our community, the WellChild Family Tree to connect with others who ‘get it’ for mutual support, advice, and friendship.
- The BBC Parents Toolkit may also help you communicate with your child about topics relating to going back to school. It consists of bite-size videos you can watch together, which be can viewed here.
Special Education Provision and Plans
Special educational provision is anything that “educates or trains” your child outside of typical teaching. For example, getting individual support, or seeing a speech and language therapist.
All schools have a Special Educational Needs Coordinator (SENCO) who works with teachers, parents, and health professionals to meet a child’s special educational needs (SEN) or special educational needs and disability (SEND).
If your child’s needs are not met by the SEND provision you can apply to the local authority for an Education, Health, and Care Plan (EHCP) needs assessment.
An EHCP is a way of getting your child specific support at school. Legally, local authorities must provide support in a child’s EHCP.
You can ask for an ECHP assessment from your local authority. It is helpful if the school participates in the process, but not essential. To find out more about the EHCP process, click here.
If you already have an EHCP plan, check when it was last reviewed. EHCPs should be reviewed annually and when there is a change in circumstances.
Under the Children & Families Act (2014) it is a legal requirement that all Local Authorities have a Local Offer website, which details support available for SEND needs. You can read our article on Local Offers and find links to your Local Authority in our article here.
The IPSEA and SOSSEN both support parents to secure the right to special educational provisions for children and young people with SEND.
The SEND guide for parents and carers can be found here. The Department for Education has also listed additional resources to support pupils with medical conditions. You can find links to these resources in the yellow box below.
The devolved nations call their SEND support by different names:
In Wales, the system of support for children with SEND is called ‘Additional Leaning Needs’ (ALN). You can find out more here.
In Scotland, the system of support for children with SEND is called ‘Additional Support for Learning’ (ASL). You can find out more here.
In Northern Ireland, the system of support for children with SEND is managed special educational needs advice centre (SENAC). You can find out more here.
The below has been taken from the Department of Education’s Statutory Guidance on supporting pupils with medical conditions.
You can view the full document here.
1. Departmental guidance and advice
- Special educational needs and disability code of practice 0 to 25
- The early years foundation stage – sets out specific requirements on early years settings in managing medicines for children under 5 years of age
- Working together to safeguard children – statutory guidance on inter-agency working
- Safeguarding children: keeping children safe in education – statutory guidance for schools and colleges
- Ensuring a good education for children who cannot attend school because of health needs – statutory guidance for local authorities
- Alternative provision – statutory guidance for local authorities and headteachers and governing bodies of all educational settings providing alternative provision
2. Associated resources and organisations – wider government
- Managing children with health care needs: delegation of clinical procedures, training and accountability issues – published by the Royal College of Nursing in 2008, this document highlights the clinical procedures which could be safely taught and delegated to unregistered health and non-health qualified staff
- Getting it right for children, young people and families – provides information on the Department of Health vision for the role of the school nurse
- Health and Safety Executive – this website covers schools (state-funded and independent), further education establishments and higher education institutions.
- School trips and outdoor learning activities: dealing with the health and safety myths – provides information for managers and staff in local authorities and schools
- Standards for medicines management (2010) – produced by the Nursing and Midwifery Council this document sets standards for nurses, including over-delegation of the administration of medicinal products
- Healthy child programme 5 to 19 – this good practice guidance sets out the recommended framework of universal and progressive services for children and young people to promote health and wellbeing
3. Associated resources and organisations – external
- Medicines for Children provides information about various medicines prescribed to children. It is run by the Royal College of Paediatrics and Child Health (RCPCH), the Neonatal and Paediatric Pharmacists Group (NPPG) and WellChild.
- HeadMeds – provides information about mental health medication for young people and to answer the difficult questions that young people may have about their medication but may not feel comfortable asking an adult or professional about
- Medical conditions at school partnership – includes an example school policy, a form for a healthcare plan, other forms for record keeping, and information on specific health conditions
- The Council for Disabled Children (2014) has published 2 practical handbooks to help local authorities, schools, early years settings and health providers develop policies and procedures to ensure that children with complex health and behavioural needs can access education, healthcare and childcare.
- Mencap provides support to people with learning disabilities, their families and carers
- Contact a Family provides support to the families of disabled children whatever their condition or disability
4. Associated resources and organisations – medical conditions
- Education and Resources for Improving Childhood Continence (ERIC) supports children with bladder and bowel problems and campaigns for better childhood continence care
- Anaphylaxis Campaign – supports people at risk from severe allergic reactions (anaphylaxis)
- Little Hearts Matter – offers support and information to children, and their families, with complex, non-correctable congenital heart conditions.
- Sickle cell and Young Stroke Survivors – supports children and young people who have suffered a stroke or at risk of stroke as a result of sickle cell anaemia
- The Association of Young People with ME – supports and informs children and young people with ME (myalgic encephalomyelitis)/CFS (chronic fatigue syndrome), as well as their families, and professionals in health, education and social care.
- Young Epilepsy – supports young people with epilepsy and associated conditions.
The information in this article was correct at the time of publishing but may be subject to change.
If you have any comments, ideas, or suggestions about this article please contact us at [email protected]
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Kathy Gibson, Digital Information Officer
First published: July 2023
Last reviewed: July 2024
Review due: July 2025