Communicating Lily’s Pain

Some of the children WellChild support experience pain on a daily basis, and their parents have become skilled in assessing and managing their child’s pain. When a new pain occurs or a known pain worsens, parents turn to health professionals for help.

This video explores some of the communication challenges that occur when a parent of a child like Lily asks for help with their child’s pain.

The ‘Communicating Lily’s Pain’ animation and downloadable resources were funded by WellChild and developed by Professor Bernie Carter and Rob Young from Edge Hill University, with help from members of the WellChild Family Tree who have children with cognitive impairment and complex health needs. The families contributed their knowledge and experience to ensure the resource helps both parents and health professionals to work together to understand the communication challenges that can occur.

Click on the yellow boxes below to download the free resources.

You can read more about the research undertaken while producing Lily’s pain, the results, and the impact of the project here

A huge thank you to our WellChild Parent Ambassador, Jill, who recorded the voice over for the animation, and to all the parents who contributed to the creation of this resource.

Also to Professor Bernie Carter, Rob Young and James Munro, Edge Hill University for developing the resources.

This resource has been endorsed by the Royal College of Nursing.

If you have any comments, ideas, or suggestions about this article please contact us at [email protected]

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