Condition Management
Information and resources about condition management, medications and health services.
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Growing up using a Ventilator
A booklet written for young people and young adults that use a ventilator to support their breathing.
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Wolfram Syndrome Resources
Take a look at our useful resources to help those with Wolfram Syndrome and their families.
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Child to Parent Violence (CPV)
In this article, we look at what CPV is, whether it differs in children with disabilities, things you can do to address CPV, plus what other support is available to you.
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Communicating Lily’s Pain
Resources that explore communication challenges that can occur around a child with profound cognitive impairment who experience pain.
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Gut Feeling – A Journey Through a Child’s Digestive System
Gut Feeling is a book, published in collaboration between Nicola Stewart and Evelina London Children’s Hospital. It provides insight for parents and carers of children with digestive disorders.
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Video guides for parents caring for a child with a gastrostomy
Developed by Oxford Simulation Training and Research (OxSTaR)
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Jargon Buster
A guide to some of the acronyms and terms used by health and social care professionals.
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An easy read guide for young people transitioning to adult’s services
This guide is for young people with complex needs aged 15-18. The information is about what will happen as you move from children’s services to adult’s services.
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Useful training videos and guides
WellChild Training Nurses recommend training videos and guides for BLS, Tracheostomy care, equipment, and more.
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Organisations and resources for families with an autistic child
Use this page to find resources and organisations that can help families with an autistic child.
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Medicines for Children
Practical and reliable advice about giving medications to your child.
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Living with COVID-19
This article looks at how the UK is managing Covid-19 since the end of the global emergency status, and how we can learn to live with the virus.
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