Growing up using a Ventilator

A booklet written for young people and young adults that use a ventilator to support their breathing.

A booklet for young people and young adults (11+), written by the Long-Term Ventilation Team at Royal Manchester Children’s Hospital and the Northwest Ventilation Unit at Wythenshawe Hospital, Manchester University NHS Foundation Trust.

The booklet is free and downloadable. It includes information on:

Ventilator support and care
Health, lifestyle, and leisure
Travel
Education and work
Managing Emotions
Further support and information

The booklet was written with input from young people who use ventilators, MFT Youth Forum, Nurse Specialists, Physiotherapists, and Psychologists from the Children’s and Adult LTV teams at MFT.

WellChild would like to give special thanks to Janice Fauset-Jones, a WellChild Specialist Practitioner (Transition Nurse for Complex Needs and Long-Term Ventilation), who has given her time and expertise to make this booklet possible.