New Parent
Articles and resources to help and support new parents of children with complex health needs
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Complex discharge – What to Expect
What to expect when your child with complex health needs is discharged from hospital.
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Communicating Lily’s Pain
Resources that explore communication challenges that can occur around a child with profound cognitive impairment who experience pain.
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Gut Feeling – A Journey Through a Child’s Digestive System
Gut Feeling is a book, published in collaboration between Nicola Stewart and Evelina London Children’s Hospital. It provides insight for parents and carers of children with digestive disorders.
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Organisations and resources for families with an autistic child
Use this page to find resources and organisations that can help families with an autistic child.
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Jargon Buster
A guide to some of the acronyms and terms used by health and social care professionals.
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Medicines for Children
Practical and reliable advice about giving medications to your child.
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In Your Area
In Your Area is a platform where parents and carers of children with complex needs can share their knowledge and find services and activities that help families like theirs.
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Useful training videos and guides
WellChild Training Nurses recommend training videos and guides for BLS, Tracheostomy care, equipment, and more.
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Challenging Decisions
In this article, Irwin Mitchell provides guidance on challenging decisions on behalf of your child.
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Video guides for parents caring for a child with a gastrostomy
Developed by Oxford Simulation Training and Research (OxSTaR)
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Communicating and Working with Practitioners with Rachel Wright
In this article, we look at some top tips on ways we can work better together, and how to structure an effective complaint
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Books for Everyday Situations
In this article, we have listed a variety of books that deal with everyday situations parents, carers, children and young people, and siblings, go through. Topics covered range from emotional support for parent carers, to addressing the pressures young people with disabled siblings face. Plus top-tips for reading with a child who has complex health needs.
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